Tuesday, January 12, 2010

update.

This is a picture of her picc line. All it is, is a long term iv that goes strait to the heart. rather then going through the veins then to the heart.


Sorry to every one who only like's the posts with pictures. I am doing this more for me to document and remember then any thing else. Edynn got really sick last week with a cold i thought, cause thats what her sister had so i figured thats what she had. I had a feeling to take her to the dr. just in case. So me being the paranoid person that i am took her to the dr thinking that she had the same thing zy had. well my awesome pediatrician said he thinks its just a cold but sent me to get a test done and then told me to watch her really close cause she had a fever. well he called to check on her later that night around seven, and i updated him on what she was doing. he seemed a little concerned so he told me to give it another two hours and then he would call me back and see how she is. well when he called back and we talked about her symptoms and what she was doing, and he told me that he thinks that we should admit her for some more tests cause she did have a fever. I guess a fever in a new born is really bad. well we got to the hospital around 10 pm monday night and her dr met us there to talk and to order some more test. I guess when a new born has a fever they do a complete work up which includes doind blood work, urinalysis, and a spinal tap. Well tuesday when we got all the test results back they all came back normal and so they sent us home, we got home about 10:30pm tuesday night and then i got a call from her dr. about an hour later, so i just thought he was calling to see how we were. well when i started to talk to him, he then told me that he had bad news, he said that one of the test, the only one that they did not have back yet when he sent us home came back posative for hsv encephalitis. Well I guess that this is really bad in new borns because they dont have the lining that protects the brain from infections is not there and so there body does not know how to fight off infections or tell the body how to get rid of them. This is a really bad virus which is kinda like meningitis but it goes to the brain and starts eating it away, and if it is not detected or treated early enough it can kill a baby. so i am freaking out at this time. so they had to do a bunch of other tests, a ct scan, mri, more blood work and then the way they treat this is they have to give anti viral medications to her three times a day, every 8 hours. so we got ALL the results back and they were all normal, she will not have any long term effects from this and they caught it by mistake that why they sent us home, because she was not showing any signs of this at all so the dr thought it would for sure come back neg. so because they caught this so early it was only in her spinal fluid and no where else in the body so they think that she will make a complete recovery from it with no harm. All i can say is that this was a huge faith tester for our family. We have done so much praying and gotten so many blessings that i can not even tell you. All i know is that i would be totally lost with out the gospel in my life and with out the power of the priesthood i dont think that i would have made it through all of this. Eddy is home and doing awesome you would not even think any thing was wrong with her because she is just a normal as ever. They put in a picc line and i give her her medications every 8 hours and it is given over an hour. so she is on home health just in case i need help and they come out and change the dressing on her arm and do all that fun stuff. I take her to the pediatrician tomorrow for a follow up from being in the hospital for a week. She also has to meet with a pediatrician infectious disease specialist and he will continue to follow her for the next year to make sure it does not come back and see if she meets all of her milestones on time. So if any one is in need of some good drs or any thing i have meet some awesome drs last week. I love my baby girls so much i dont know what i would do with out them, or with out jake. I love my little family. Yes i am cheesy and gay lol. :)


7 comments:

Dani said...

Dan, so happy to hear she's doing well - Let me know if you need anything! Such a beautiful little family!

Leah said...

Oh, poor baby! So sorry to hear this. I hope everything turns out alright. She's a doll.

Leslie said...

oh my goodness Danielle! I had no idea! I'm glad things are looking up--it is so hard when any little ones, especially newborns, have to go through something like this. You just hurt for them!
I'm also glad you have the gospel and priesthood in your life--what a blessing during this trial!
She is BEAUTIFUL!

Shantell said...

Dan! I am so sorry to hear about all this. You and your family are truly blessed though. I can only imagine how you felt. Let me know if you need anything. Love ya lots!

Sean and Haley Reay said...

We love you and your family!!! Let me know please if I can help you at all.

Chelsie and Trace said...

Dan that is really scary I'm glad she is doing better! If you need anything give me a call.

Brittany said...

I hate when your kids get sick, especially when you are also playing the waiting game on test results. I am glad she is doing better, hope all continues to go well.

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